HHT Awareness In June

 More than a Nosebleed

(Hereditary Hemorrhagic Telangiectasia)

Many people let a nosebleed go unnoticed, but for many it is an indication of a life-threatening disease. Hereditary Hemorrhagic Telangiectasia or HHT is a genetic disorder that causes abnormalities of blood vessels. Most blood vessels in the body of someone with HHT are normal. However, a small percentage of the blood vessels in a person with HHT have a specific type of abnormality.

A person with HHT has a tendency to form blood vessels that lack the capillaries between an artery and vein. This means that arterial blood under high pressure flows directly into a vein without first having to squeeze through the very small capillaries. This place where an artery is connected directly to a vein tends to be a fragile site that can rupture and result in bleeding. This disorder is passed from generation to generation and without proper diagnosis and treatment can be fatal. The most commonly affected organs are the nose, lungs, GI tract, brain and spine. While symptoms can be mild, the most severe cases require regular blood transfusions.

Approximately 1 in 5,000 people have this disorder. Without the volunteers who sacrifice a few minutes of their time and a little bit of themselves to donate blood, patients with this uncommon disorder would not survive. Doc Hanks, representative for the HHT Foundation, explains, “Nine out of 10 people go undiagnosed. If nosebleeds are common, you have fatigue, or notice purple spots – like broken blood vessels on your skin – you should see a doctor who is knowledgeable about HHT. There are screenings available that can help prevent severe complications, particularly those that affect the lungs and brain.”

Lake Charles:

Acadiana Mall
Saturday, June 22
11a.m. - 4p.m.
5725 Johnston Street
Lafayette, LA 70503

Walmart Sulphur
Saturday, June 29
11a.m. - 4p.m.
525 N. Cities Service Hwy
Sulphur, LA 70663

Shreveport:

Simple Church
Sunday, June 23
8:30a.m.- 1:30p.m.
Two River Colony Drive
Bossier City, LA 71111

Simple Church
Sunday, June 23
7:30a.m. - 1:30p.m.
400 Caddo Street
Shreveport, LA 71101

Baton Rouge:

Wal-Mart Denham Springs
Thursday, June 20
12p.m. - 6p.m.
904 S. Range Ave.
Denham Springs, LA

Walmart Prairieville
Friday, June 21
12p.m. - 6p.m.
17585 Airline Hwy
Prairieville, LA

 

Walmart LA Place
Saturday, June 22
10a.m. - 4p.m.
1616 W. Airline Hwy

Walmart Gonzales
Sunday, June 23
10a.m. - 4p.m.
908 N. Airline Hwy
Gonzales, LA

 

Walmart Zachary
Friday, June 21
12p.m. - 6p.m.
5801 Main Street
Zachary, LA

Alexandria:

 Walmart Leesville
Saturday, June 15
12p.m. – 6p.m.
2204 South 5th St.
Leesville, LA 71446

Walmart Orange
Friday, June 21
1p.m. – 5p.m.
3115 Edger Brown Dr.  
Orange, TX  77630

 

 Alexandria LifeShare Blood Center s
Friday, June 14
9a.m. – 5:30p.m.
2051 North Mall Dr.
Alexandria LA 71301

Texarkana:

 

Celebrating June is HHT Awareness Month
Texarkana LifeShare Blood Centers
Thursday, June 13
1321 College Drive
Texarkana, TX 75503

Monroe:

Swamp Stomp
Thursday, June 6 - Saturday, June 8
11 a.m. - 7 p.m.
4700 Pecanland Mall Monroe, LA 71203
inside the old Kirklands location

Go to www.lifeShare.org or call 337.436.4932 to schedule a blood donation or for more information go to the HHT Foundation web site at HHT.org or contact “Doc” Hanks, representative for the HHT Foundation in the state of Louisiana, at This e-mail address is being protected from spambots. You need JavaScript enabled to view it.

HHT Stories:

Doc Hanks  Raymond

Doc Hanks and his late cousin, Raymond.  Both are one of more than 1.2 million people worldwide that have HHT.

Krystal Pearce

 Benton resident Krystal Pearce, and her three sons live with Hereditary Hemorrhagic Telangiectasia.

mclinda

Mclinda, 12 years old from Denham Springs, Louisiana, diagnosed with HHT.

Annah Kara and Haley

 Bossier City residents Annah, Kara and Haley all live with Hereditary Hemorrhagic Telangiectasia.

GrimmettFamily

HHT runs in Katie Grimmett's family. Read about Katie's story here.

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